Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.
for Rare Disease Week on Capitol Hill, then for the Fast Forward for RARE webinar. We hope to see you there!
Every voice matters!
Check out the videos below to hear more about the issues important to the rare disease community.
- Visit the Fast Forward for RARE video suite at an upcoming rare disease or patient conference
- Share your story on camera
- Get immediate feedback and tips
- Apply what you learn to inspire action
- Share your story to raise awareness
- Speak with your legislators to advocate for policy change
- Receive a digital copy of your video and photo to share
Our team of communication specialists is eager to provide you with the tools to feel prepared and comfortable advocating for your rare disease community.